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The Great Fibromyalgia Experiment
Thursday July 27, 2006
I know its been a while since I posted anything here, but I wanted to make certain of how Lyrica was going to affect me before I posted again.
Lyrica has made a dramatic impact on my pain. I would say that it has taken away at least 60% to 70% of my total pain. I can still get some pretty good pain going if I really over do it, but I am very excited with these results. My doctor tells me that I can even get rid of more pain if I go up to the next higher dosage of Lyrica, but I'm not real sure about that yet. If I do go up to the next highest does I will report back here.
The original side effects that I suffered with lyrica have all worked themselves out now and are totally gone. I think it just may have been my senses re-adjusting to not being in agony twenty four hours a day.
I have lots more energy now because I don't have agonizing pain sucking the life out of me 24/7. I am super excited about this development.
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Friday June 30, 2006
It is so nice to be able to run a finger across my skin and feel something besides pain. I didn't really know how much pain I was in until Lyrica made it stop. It's really going to suck if I have to stop taking it due to side effects. I am still feeling a little bit off kilter during the day, but I plan to give it more time. I can also lower the dose I am taking.
I went to the lake yesterday and really over did it. I swam, fished, and played with the kids all day. usually that much exercise would put me in agony and in the bed, but today I got up and had a very active day with minimal stiffness and just a little pain.
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Wednesday June 28, 2006
The first three days that I took the lyrica and the med for my blood sugar they made me really sick to my stomach. That has passed now, and I am pretty sure that the blood sugar medicine was the culprit.
About the Lyrica....I can't believe it, but I have to report that at least 80% of my pain is totally gone, and a lot of my stiffness has subsided as well.This is the first time that I haven't been in constant and excruciating pain in the past thirteen years.
The down side...I am having a weird side effect to this medicine. Its like my perceptions and balance are just the tiniest bit out of kilter. Its a really weird feeling. I am hoping and praying that this side effect will pass. I do not want to go back to being in pain all the time.
Hopefully my senses are simply trying to re-adjust to not being in agony all day long. After thirteen years of that I'm sure my brain has overcompensated for the pain and stiffness...you know...its kind of like if you had spent 13 years in a dark cave and then suddenly got tossed into a brightly lit room.
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Thursday June 22, 2006
well...I found out today that I have PCOS (polycystic ovarian syndrome),which actually explains a few things health wise. I also discovered that I am insulin resistant, which means that my body refuses to use my insulin and it just floats around in my blood stream making me feel like crap. I am going to be taking a medication to alleviate the insulin resistence.
The other med that he wanted me to try is called Lyrica. He says that his fibro patients have been getting from between 75% and 100% relief from pain with this drug. I refuse to get excited. I have been down this road before. However, I am very interested in these new developments. It’s the first time that anything has ever shown up in my blood work or tests since I became ill.
I will keep reporting daily on my progress with these medications.
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I am putting this experiment on hold for now. I am actually going to give this new doctor a shot...I know...I know...it's probably futile, but I'm gonna try just one more time.
I have agreed to try a new medication that is shown to reduce Fibromyalgia pain significantly. If I take this drug it will render the results of my experiment useless. If I improve, I will have no way of knowing if it was the drug or the diet and exercise that caused the improvement.
I am going to start this drug tomorrow, and I will post the results of it's use to this blog. If the drug fails, which it probably will, then I will simply begin the experiment again.
I am so pathetic. I can't believe I keep letting doctors play me like this. They get my hopes up and then let me crash when their hair brained schemes don't work. O well...we'll just start calling this the big hair brained scheme experiment from now on.
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